tag:blogger.com,1999:blog-63835927015804929782011-11-30T21:45:43.366+11:00This is my first blog about my eldest son and his struggle with SPD. We always knew he was a bit different from other children. We recently found out that he has SPD. We didn't understand his condition until then and have had trouble getting support for him. I'll use this blog to record how his treatment goes and how he settles in at his new school... 3 months later and we now know he has a rare chromosome disorder.father of fourhttp://www.blogger.com/profile/13545620094928864276noreply@blogger.comBlogger141100tag:blogger.com,1999:blog-6383592701580492978.post-20805179825665902762011-11-30T21:45:00.001+11:002011-11-30T21:45:43.377+11:00

My eldest son is starting High School next year. We are anxious about this and have been working to prepare for it. The disability coordinator asked me about the 5 things that his teacher's need to know. I am a unique, but I did not choose to be different.You may recognise things about me that you are familiar with, such as not seeming to understand what you are saying, that I get frustrated

father of fourhttp://www.blogger.com/profile/13545620094928864276noreply@blogger.com0tag:blogger.com,1999:blog-6383592701580492978.post-91501983121728872622011-01-09T17:12:00.001+11:002011-01-09T17:16:15.412+11:00

I have only just stumbled upon 10 things every child with Autism wishes you knew. Perhaps I'd brushed past it in my search for information without paying enough attention. Anyone who has followed my blogs over the past year will realise that our family have been learning these lessons. Here are some of the highlights for me ... I did not choose to have autism. But remember that it is happening

father of fourhttp://www.blogger.com/profile/13545620094928864276noreply@blogger.com5tag:blogger.com,1999:blog-6383592701580492978.post-59356296404454308452011-01-08T21:58:00.003+11:002011-01-09T22:05:58.718+11:00

Parenting my eldest son is now a public access blog again. I was concerned about our privacy when I made this private because our son was being bullied by kids in the neighbourhood. For the past year we have tried to establish the support that he needs at school and in the community without much success. So after a difficult year in 2010 we are moving back home again at the end of this month and

father of fourhttp://www.blogger.com/profile/13545620094928864276noreply@blogger.com2tag:blogger.com,1999:blog-6383592701580492978.post-11963999799035894442010-12-25T21:23:00.000+11:002010-12-25T21:23:53.409+11:00

Merry Christmas everyone. We had a very good day today. Most of our children slept in until at least 6am before opening their presents. Some good friends came for lunch. We played cricket. We went for a walk and spent a couple of hours at the beach. He had some quiet time playing cars in his bedroom. Our eldest son likes his new iPod Touch. When he went to bed he was trying the pattern matching

father of fourhttp://www.blogger.com/profile/13545620094928864276noreply@blogger.com0tag:blogger.com,1999:blog-6383592701580492978.post-3420319121605344592010-11-09T20:50:00.000+11:002010-11-09T20:50:08.345+11:00

IKOT: Sensory Diets: "One of the big things that OT's talk about is a good sensory diet. Sometimes it is really hard to implement these at home and it can feel ov..."

father of fourhttp://www.blogger.com/profile/13545620094928864276noreply@blogger.com0tag:blogger.com,1999:blog-6383592701580492978.post-13658862940279213682010-09-09T21:23:00.001+10:002010-09-09T21:25:03.958+10:00

You can read the full text in this Washington post article. Everyone has their own path to tread.

father of fourhttp://www.blogger.com/profile/13545620094928864276noreply@blogger.com5tag:blogger.com,1999:blog-6383592701580492978.post-72388462531108785182010-08-19T22:22:00.002+10:002010-08-19T22:23:58.378+10:00

There is some helpful stuff in this information for teachers and parents from Klinefelters Syndrome Association (UK) such as: Work with ALL the pupils in the class at developing a culture of acceptance and inclusion. It is very easy for these boys to be bullied and teased resulting in terrible and seemingly irreversible consequences, yet a supportive peer group can grow a boy with a radiant

father of fourhttp://www.blogger.com/profile/13545620094928864276noreply@blogger.com0tag:blogger.com,1999:blog-6383592701580492978.post-11962800016978453402010-07-26T21:23:00.004+10:002010-07-29T21:11:03.922+10:00

Here are my suggestions to aid in getting a definitive diagnosis, treatment and support for your child with special needs. I promised to put this together a while ago now. I will keep coming back to update this as we find our more. write down all of the symptoms get medical advice - a diagnosis will help, you may need several opinions follow up all leads, try and rule things out if you are not

father of fourhttp://www.blogger.com/profile/13545620094928864276noreply@blogger.com3tag:blogger.com,1999:blog-6383592701580492978.post-28747431039472056662010-07-23T21:21:00.001+10:002010-07-23T21:23:26.456+10:00

Caitlyn Wray has now posted an interview with Gavin Bollard, noted blogger, on her blog Welcome to Normal. If you liked this series for father's day (which isn't until September in Australia) you should also check out Gavin's blog at Life with Asperger's. I also liked this pixels post by Bob De Long just because it was fun. :) Also Parentingmyeldestson is now a private blog again. If you would

father of fourhttp://www.blogger.com/profile/13545620094928864276noreply@blogger.com0tag:blogger.com,1999:blog-6383592701580492978.post-80105016739840799522010-06-27T13:35:00.000+10:002010-06-27T13:35:40.099+10:00

You can now read my full interview with Chynna at the Gift: a Blog for Caregivers of Sensational Children. This is the last post in her series.

father of fourhttp://www.blogger.com/profile/13545620094928864276noreply@blogger.com0tag:blogger.com,1999:blog-6383592701580492978.post-44360650857801302632010-06-18T21:53:00.000+10:002010-06-18T21:53:11.258+10:00

Chynna Laird also interviewed me for the "Celebrating Sensational Dads" issue in her newsletter. You can sign up for the newsletter at LilyWolfWords or visit her blog the Gift to find out more about this. This is how Chynna introduced this segment: Since this issue is all about celebrating 'sensational' dads, I thought we'd invite another father to "The Gift" and share with us what raising a

father of fourhttp://www.blogger.com/profile/13545620094928864276noreply@blogger.com0tag:blogger.com,1999:blog-6383592701580492978.post-23924375401554194612010-06-09T22:34:00.006+10:002010-07-26T21:48:23.159+10:00

If you would like to read all of the posts that I have written since we found out about Sensory Processing Disorder and before our son's diagnosis with a rare chromosome disorder then you can visit parentingmyeldestson. For the rest of this month I have decided to make this blog, that records the highs and lows of our lives since then, available to the public again. This is because Caitlin Wray

father of fourhttp://www.blogger.com/profile/13545620094928864276noreply@blogger.com3tag:blogger.com,1999:blog-6383592701580492978.post-57945870347847639242010-03-28T14:56:00.004+11:002010-03-31T23:02:10.713+11:00

I will be making some changes to myeldestson blog over the next week. That's because I want to make sure that I protect the privacy of my son and our family. I also want to respect the privacy of other people and make sure that I do not publicly share information about anyone who could be identified through this. When I first started this blog, it was to share information about Sensory

father of fourhttp://www.blogger.com/profile/13545620094928864276noreply@blogger.com3tag:blogger.com,1999:blog-6383592701580492978.post-54743856578870561162010-03-23T22:01:00.006+11:002010-03-31T23:07:44.859+11:00

I've said that our eldest son has many "abilities" and I wanted to write about them tonight. This is something I will be adding to over time. Still a work in progress so to speak. He is very forgiving - always and every-time. He isn't always treated well by many people. He often says that we are mean to him too, but he always forgives us. He never holds a grudge. He has a quirky sense of humour

father of fourhttp://www.blogger.com/profile/13545620094928864276noreply@blogger.com4